More Seizures, How Wonderful (I Say With Total Sarcasm)

Having seizures up the wazoo and I don’t know I’m having them half the time. These past two month’s, especially last these few weeks have been had. I knew when I started this blog I had memory problems because of the amount of seizures I have and the length I have been having them (since I was 12 1/2 years old) and they are not controlled. It’s taken a toll on my poor brain. It’s slipping a way I feel. I hate feeling like this.

I write down all my seizures that “I know about” in my google calendar and mark them in purple (color for epilepsy) to help me not forget and write any thing specific in the not section, otherwise I won’t forget a few hours later. I may not know I’m having the seizure but after 10-20 min’s I have tale tell signs that something had gone on and I can check my Nest Cams. Yes I have video cameras in my house and they have helped me more times then I can count.

Anyway. I’m just hoping my memory gets better and my seizures lessen. My brain surgery is coming up soon on the 21st of this month, a few days after my anniversary.

Let's Be Honest...Seizures Suck!

Hello everyone, the last few month for me have been pretty up and down. Sorry I’ve been a little incognito.

Here is what has been up lately:

  1. I had two brain surgeries(they went well, besides almost two weeks in the hospital).

  2. Seizures up the wazoo. Not shocking, had one yesterday.

  3. Migraines like you can’t even imagine

  4. Some depression. Yes people, “untamed” epilepsy/seizures can be quit depressing.

  5. And on top of that my brother is dying of cancer. (Please keep my brother Michael in your thoughts.)

So life is grand, and I say that with complete and total sarcasm.

I have my next surgery next month. I will be having laser ablation surgery, this is new to me.I will be asleep laying on an MRI table for hours and hours. I have praying I don’t get bed sores from this procedure since apparently I won’t be moved once the entire surgery. I have had one once before after my 3rd surgery 10 years ago, not fun! So cross your fingers everyone!

I just wanted to give everyone an update on what life has been like. I’ve missed you all.

And yes…seizures suck!

Seizure Update: "Unknowing Rewinding Chapters"

Epilepsy Update: Yesterday I think was my first seizure of the month. (yeah, I say with total sarcasm.) Anyway, I had a seizure last night while listening to an Audible book(an audio book) I have already previously listened to in the past but it is one of my favorite books by Adriana Mather, one of my favorite Authors. One thing that really annoyed me but yet impressed me is I some how managed to rewind & go back 20 chapters or so on my Google Pixel phone while having the seizure obviously without knowing it...Yes, I am that talented. I was extremely confused when I finally went back to listen to my audible book and realized I had already listened those chapters. Eventually I had found where I was at before the seizure had took place and continued on my way in "blissful book listening harmony".  

Last Lunch Before Getting Admitted & My First Night Back At Yale 

Last Lunch Before Getting Admitted & My First Night Back At Yale 

We're Back!: Trip To Yale New Haven Hospital

Last week, Mom, Chris and I drove from NJ to New Haven, CT for my first appointment up at Yale New Haven Hospital (YNHH). We went to talk shop with Yale Epilepsy and make a plan for the next few months before my surgery. I even got to see Dr. Spencer, the neurosurgeon who operated on me 10 years ago and some of his team who I consider family. While we were there of course me and my trusty Google Pixel 2 XL snapped some pictures in the car while my mom was driving. By the end of the appoint me we had come up with a clear plan and as of today we even have a date that we will start all of the testing, August 15! So soon. 

family.