Started My Own WeedTube Channel

It’s exactly what it says in the title. I started a channel on “The WeedTube”. I have a YouTube channel and I have a few video’s up, that is true but what I really want to put up and post would most definitely get me shut down like most people I follow on youtube sadly. So some very wise people came together and created “The WeedTube.” What a genius idea, where people could come and voice their concerns and review though thoughts about anything “medically related” let’s say. There are also many other type of things you can post as well, the world is your oyster. I’m just happy I know have a place I can be me with no persecution.

Check me out.

https://www.theweedtube.com/User/misssarahlouise/

What Do I Do With The Medical Marijuana I Purchase?

For my seizure control, well more to lessen them I make my own gel capsules of High CBD coconut oil. I buy the flower and make the High CBD/Low THC coconut oil in my Magical Butter Machine and then add the oil into empty gel capsules that I buy in bulk on Amazon. They will last forever in the fridge. My seizures do lessen during the month but they still aren’t fully controlled, hence why I’m having brain surgery in less then 10 days.

I also grind my flower (High CBD, Hybrid, or High THC) and put it in king palm leaves pre -rolls (healthier, slow burning and no tobacco in sight). Great for when my migraines just won’t let up or when the world is being unkind and I am feeling down aka depressed. Epilepsy can be quite depressing, especially when they are not controlled.

Medical Marijuana can help so many people, it has helped me, I just wish all 50 states would realize that as well.

More Seizures, How Wonderful (I Say With Total Sarcasm)

Having seizures up the wazoo and I don’t know I’m having them half the time. These past two month’s, especially last these few weeks have been had. I knew when I started this blog I had memory problems because of the amount of seizures I have and the length I have been having them (since I was 12 1/2 years old) and they are not controlled. It’s taken a toll on my poor brain. It’s slipping a way I feel. I hate feeling like this.

I write down all my seizures that “I know about” in my google calendar and mark them in purple (color for epilepsy) to help me not forget and write any thing specific in the not section, otherwise I won’t forget a few hours later. I may not know I’m having the seizure but after 10-20 min’s I have tale tell signs that something had gone on and I can check my Nest Cams. Yes I have video cameras in my house and they have helped me more times then I can count.

Anyway. I’m just hoping my memory gets better and my seizures lessen. My brain surgery is coming up soon on the 21st of this month, a few days after my anniversary.

Let's Be Honest...Seizures Suck!

Hello everyone, the last few month for me have been pretty up and down. Sorry I’ve been a little incognito.

Here is what has been up lately:

  1. I had two brain surgeries(they went well, besides almost two weeks in the hospital).

  2. Seizures up the wazoo. Not shocking, had one yesterday.

  3. Migraines like you can’t even imagine

  4. Some depression. Yes people, “untamed” epilepsy/seizures can be quit depressing.

  5. And on top of that my brother is dying of cancer. (Please keep my brother Michael in your thoughts.)

So life is grand, and I say that with complete and total sarcasm.

I have my next surgery next month. I will be having laser ablation surgery, this is new to me.I will be asleep laying on an MRI table for hours and hours. I have praying I don’t get bed sores from this procedure since apparently I won’t be moved once the entire surgery. I have had one once before after my 3rd surgery 10 years ago, not fun! So cross your fingers everyone!

I just wanted to give everyone an update on what life has been like. I’ve missed you all.

And yes…seizures suck!

Seizure Update: "Unknowing Rewinding Chapters"

Epilepsy Update: Yesterday I think was my first seizure of the month. (yeah, I say with total sarcasm.) Anyway, I had a seizure last night while listening to an Audible book(an audio book) I have already previously listened to in the past but it is one of my favorite books by Adriana Mather, one of my favorite Authors. One thing that really annoyed me but yet impressed me is I some how managed to rewind & go back 20 chapters or so on my Google Pixel phone while having the seizure obviously without knowing it...Yes, I am that talented. I was extremely confused when I finally went back to listen to my audible book and realized I had already listened those chapters. Eventually I had found where I was at before the seizure had took place and continued on my way in "blissful book listening harmony".  

5 Days At Yale | Almost September (Fall Is Here!)

5 Days At Yale

Hello, I am out and I am safe back at home. I had a nice 5 days at up at Yale New Haven Hospital. The food is still as good as I remember, I know recall that I hate that I'm not allowed to leave my bed without permission because its set to go off via alarm if I set foot off of it, but otherwise I had a good stay. I had 4 seizures, otherwise known as data. Not fun, and very tiring but that is what I was their for and hey i got to drink coffee! The bottom line I got from the end of my visit at the end of my visit at the hospital was that they would be able to do some type of surgery, not sure what type but that there would be some type of improvement in my life when it comes to my seizures. 

Almost September (Fall Is Here!)

There is less then 13 days left of August. Don't get me wrong I love summer but I love Fall and I count September 1st as the beginning of Fall. I mean the weather today in NJ was perfect! Not to cold not hot. I would be dancing around if I wasn't still so sluggish from the hospital still. For me September meals Fall and Fall meals new styles of cooking, fall scented candles, new home decor, new styles of clothing...I fulling embrace fall, can you tell? And September so close i was to share one of my favorite recipes with you. I got it from one of my favorite YouTubers, Kalyn Nicholson. Kalyn got it off the great allergy friendly website theprettybee.com

I am in love with the Vegan Chocolate-Pumpkin Swirl Loaf Cake Recipe in Kalyn's video. It is not a hard recipe to follow, I have made it myself at least a dozen times and a favorite of my boyfriend who has numerous food allergies. I Hope you all enjoy this recipe and others on the pretty bee as much as I do! The next few weeks/months I will post from time to time Recipes/pictures of my creations of other favorite recipes for this fall! 

 

 

Last Lunch Before Getting Admitted & My First Night Back At Yale 

Last Lunch Before Getting Admitted & My First Night Back At Yale 

We're Back!: Trip To Yale New Haven Hospital

Last week, Mom, Chris and I drove from NJ to New Haven, CT for my first appointment up at Yale New Haven Hospital (YNHH). We went to talk shop with Yale Epilepsy and make a plan for the next few months before my surgery. I even got to see Dr. Spencer, the neurosurgeon who operated on me 10 years ago and some of his team who I consider family. While we were there of course me and my trusty Google Pixel 2 XL snapped some pictures in the car while my mom was driving. By the end of the appoint me we had come up with a clear plan and as of today we even have a date that we will start all of the testing, August 15! So soon. 

family.